Hope's profileClub Sammich Cafe©PhotosBlogListsMore Tools Help

Blog


    Livestrong Day and Global Awareness

     

    People are so wierd.


    Since when is it ok to introduce a friend like this:
    *This my friend Hope...my friend remember I told she has cancer!*
    Duh! Hello!! Whether or not I have cancer. I want to be known for the person I am not the disease I happen to have. I am still shocked at being introduced that way.

    Note to self. Forgive those who are insensitive for whatever the reason. They can't understand till they themselves have the disease. It also makes me thankful for the friends and family I do have/ who still sees me as the person I'm and not the disease I do have.




    Blindsided

    Earlier in the day yesterday we went to help my folks. Mom as doing well so was Dad. I felt pretty confident in that things would be okay.
    Then a few hours ago Dad called saying he was going to take Mom back to the hospital. He was worried due to swelling in her leg and ankle.
    Then he called to say they had made it down to the hospital and I am waiting to hear what the heck is going on.

    We are praying its that she over did it..Which my Mom is a tough cookie and won't crumble...thats the joke between us anyways.
    Although I am praying its not a clot or anything equally as serious. UGH!!

    I can't sleep and am waiting pretty much sucks at this point!  Sighs..Keep us in your prayers.


    Ugh I hate all of this uncertainty.

    Keep us in all in your prayers.


    Hope

    Update: 9:45 4/5/2009
    After a pretty long night Mom was admitted back to the same floor where she started out. After taking a good look at things.
    Due to the swelling and her pain level. No rehab today. Just rest , elevation and observation. 

    She had blood work, Iv's and a Cat Scan last night. As of now no clot which is a big concern after this type of surgery.

    We are going down later on to see how things are going and I want to talk to her nurse a bit.

    More when I can.

    Keep us in all in your prayers.
    Hope





    Whooo Hooo!!

    Michigan State  moves on to the Big Dance!! National Championship here we come!! Yes...how sweet it is!!

    Life goes on....yay!!

    Just a fast post this morning.  Today is charging up to be busy as well. Dad just called needing several things from the grocery store. So that will be our first stop. Then he has a few places to go. To grab a script for Mom and then to the Medical Supply store. Just enough time where Mom can't be left on her own. So we are heading there after brunch to help out.
    People from Home Care have already visited today. And will be back Monday first thing due to blood work on the Coumadin and Rehab. So Monday will be busy.
    I am so glad if she is resting. I can lay down on the couch,relax and read a book. As well as take a deep breath...Thinking If I need to.
    Beats driving down to the hospital to..Only a 7 minute drive Smile No traffic jams to deal with~!! Or hiking lol

    Well  Blue Berry waffles and sausage are up and ready...More when I can..Hugs and Prayers, Always Hope.

    Things move forward.

    Yesterday was really hectic. We watched *Little One from seven forty five till just a little after three. We ran home I changed my clothes and went to the hospital to see Mom.
    When I got there Mom was sound asleep and so was Dad in the recliner.
    So I let them sleep and took a walk to the gift shop ,then to grab a sandwich I was so hungry. I ate half of it and tucked the rest away in my purse for later on.
    My Mom is in the staying with the Spine and Knee Center of the Hospital. Which I have to say everyone we have come in contact with has her best interest at heart. Everyone has worked with us to get the best possible out come for her.
    Yesterday she had a good day. Even with the rehab she was happy but tired.
    I had gotten there and with in the unit there are things included for the patients like someone coming to fix their hair and nails. massages, a huge book cart goes through just for the patients and get this room service for food all day long as they are hungry. If you need help ring the angel button and they all come running.
    Oh and get this a Congratulations Meal which was suppose to be Prime rib which they were out of. For Mom and Dad both Mom had chicken Corden blue and Dad had salmon. With all the trimmings and cheese cake. Which I had most of Moms. Because she ate the shrimp cocktail and that was it.
    People always complain about hospital food..not here its always good.
    My parents have stayed here many times and nothing like this before. So they were nicely surprised. Always great Docs and Nurses but never all this special treatment. So they are giving the new Center a 10!!
    So the plan is if her night was good and today the morning Rehab goes well they will release her to home care. Which she was happy to hear. She is up moving around although slow. The Doc and Nurses remind her on a regular basis she is doing great for being 80.  As well as reminding her the last knee was a whole lot different situation.
    There was some question about going to a Rehab center for a while. But being home will be a better situation for her.
    So we will see what today brings. But we are optimistic at this point.
    Once she is home then the real work with Rehab begins. So she will need lots of support through that.

    We have a lot to do today.
    Have a great day everyone

    Seize the day we have. Hugs and Prayers Hope.

    Long few days.

    I haven't had the time to post. I did earlier and it did not post. Everything written poofed in to cyber land.

    Its been a very long couple days. Mom's surgery went well. She was given a Spinal and Femoral Nerve Block. She did great on Tuesday.  Things went great even the pain meds worked well.

    Now today was a different story. She about to get outta bed ..Yup already started Rehab. But then the Percocet got to her stomach. I am sure because she can't eat a lot yet.  So this caused her a lot of nausea.  (they were using Toradol also for break through pain .) Lots of drugs when your not moving around much

    My Mom and Dad are not big complainers. Less its with us Girls. So tonight I knew after Dad left to go home that Mom was not feeling well at all. She told the nurses no more Percocet and please do not bring that in to her room. She is hard of hearing so I do not believe she hears the nurses at times. The nurse wanted her to have some Compaizine for the Nausea and she was having a fit. Not hearing that would help the nausea before it gets outta hand. She had one bad situation with Morphine in the past ..And she is really worried that all meds will cause the same thing. When that will not happen. 

    My concern is getting her a pain med that works..Darvocet if possible..Which her doctor said was fine for now. She takes it anyways daily and did for her knee pain to begin with so thats fine.
    Now its was working on getting her to understand that its okay to take something if nausea was bad and she was feeling like she had to have a basin just in case she was that sick.

    We finally got across to her that she needed to be comfortable and meds could help that as well has helping her to get the much needed rest she lost out on today. When I left the Nurse was talking to her so that was a positive thing. 

    The other thing is Mom does not like being higher then a kite...and yesterday she was sailing on those meds. Plus she does not like even with the dementia she has to not have control of how she feels it makes her crazy . Plus she thinks now that all drugs will make her feel this way. Arguing with her gets you no place fast.

    So tonight was a real chore. But she needed me there and Dad was beat as well. One of the nurses was going to sit and talk to her for a bit as it was a pretty quiet night tonight.

    So between watching the Little One and Dealing with the Older Gang. I am beat and off to bed. 

    Hugs and Prayers and thanks so much for the kind words. Always Hope

    Sandwiched.

    I feel in the middle.. Sandwiched between Kids and Parents. I know that many feel that way and they get through it.
    Tomorrow, my Mom has her knee replaced. I am pretty concerned as she is almost 80. This her second knee being done and I know what she went through the first time and the rehab to get her up and walking again.
    So tomorrow I will be going one way to help Dad at the hospital and Hubby will be caring for *Little One.* Then the oldest Son when he is home from work if we need to head down to the hospital.
    We went to my nephew's wedding over the weekend and we had a really good time. We did get to talk to my sister who lives about 100 miles away who will be here the day of the Surgery and the following day as well. So that's a good thing as well, and my brother in law as well will be there. Thank goodness.
    I know I do not have the energy to take this *Little One* Back and forth to the hospital , plus its really not the place for her, anyways.  I did not do that with my Kids so I won't do it with her.
    I am concerned though about my Dad and the stress as he is just about 82. Also at this point I need more understanding on the rehab situation as this time they are not doing it at home. But in a rehab center situation. Its good..just I need more info.
    I think this a better situation then someone coming to the house. At least for my Parents right now.
    Mom had lots of health issues. So I know when she returns hope it will be a big job again,as it has been in the past.

    So lots on our mind this week. Hubby and I take care of both sets of Parents when issues arise and lately it seems like everyone has had there share of things going on.

    We don't mind helping its just at times overwhelming for the caregivers as well as...trying to take care of yourself in the process. That's seems really tricky at times to.

    Sandwiched for sure. Make it a great day everyone. Hugs and Prayers Always Hope


    Spring.

    There is a good reason why bear's hibernate !!  Winter for me is a time of just trying to keep warm and comfortable. I m not a cold weather person at  all. I love snow and hate the cold. 
    I love to look out the window  late at night and see the snow glistening in the street light. Like a million diamonds. But I get really turned off with winter clothing ,boots and coats and having to bundle up just to go out.  Nothing like a freezing day to say I want to hibernate and be a hermit.
    I love spring , hearing the birds sing is like music to my ears. Seeing new green leaves just pushing there way though the fresh earth makes me smile. Then cracking a window and feeling a warmer breeze. Seeing the morning doves return. Hearing children laughter and yelling. Buds on the trees and porch steps screaming to be sat on.  Now that is spring.
    Going to the lake and seeing the swans in flight. The watching them land in open water. Knowing in less then a few  months...there will signets to be seen.
    Knowing your part of that cycle and get to soak it all in. Amazing grace forsure.
    I love spring...everything about it. I love the sunshine through my sun roof and looking up and seeing not a cloud in the sky. Now that makes my day!

    Have a great night. Hugs and prayers, always Hope.

    Sweet Sixteen

    Wooo hooo!! Go Green! Michigan State makes to Sweet Sixteen. Yes!! That made my dayOpen-mouthed

    A New Day

       Sometimes we are stuck at another one of life's forks in the road. Right or left fork? Which do you take? Road of Breakdowns or Breakthroughs? Sometimes a breakdown would be just so much easier. But I'm a fighter and I like the breakthroughs. Simply because they help push us through to a better place.

    One thing I realized today is that. No matter what I have a new day. I can sit here and feel sorry for myself and crawl back under the covers or I can move on and live Life to its fullest. 

    I'm not saying I don't have bad days. But  having dealt with a ton of things in life and I am sure there will be many more to come. I m sure we all have our days...one day better then the next. Some we want to just write off and not think of them ever again.

    More when I have a minute.

    Hugs and Prayers always Hope


    Just some thoughts.

    As a long time survivor, over the years I have had a lot of support from family and friends. As well as local support from the doctors nurses techs and so many. I have attends local support through treatment and as well as a group for long time survivors. One thing I have learned is to listen.

    Lately on a local level the support is awesome. Enough to blow off some of the other things that I do daily.  I think for me I am in a different place.
    I love to help those starting out. But hate the drama on line and that as grown old lately.  I think that comes from people not seeing what your dealing with face to face. If they only could the attitude would change drastically.

    I have decided to back off and away from several things simply cause I can do more locally. After all I have a huge life and what I love the most
    about support is you don't have to be in a specific place to give it. If you have had cancer or been a caregiver you will know when someone needs it.

    I m lucky although lately somethings are going down. I can deal with them and I will remain vigilant on whats going down. But I am tired of people
    when I say something. They say oh *thats peachy* Or some stupid remark that doesn't at all feel supportive.

    It makes me want to hurl because its so insincere its insane. 

    Cancer once you have it you always deal with it. In one way or another its part of  the life you live. You don't just curl up in a ball and stop living.
    Life goes on .

    I m setting cancer on the shelf for a while! The other thing is that daily I am living through the eyes of a little girl. My grand daughter. I don't have time to dwell on what is coming next health wise. Just on the best things of today. That's it. Life is here and now right here this second.

    I did post the last post because, I want people to know what will help if a loved one gets cancer or someone you know. I really hate to be patronized and the thing I hate the most is when you bring something health wise up is that someone changes the subject to themselves or they have no reply. That ticks me off.

    So that said. Support is important for everyone. And if it kills me, I want people to know what works and what doesn't. If you are not in the mood to be supportive then its better to say nothing.  Just be there that's the best gift you can give anyone who is sick cancer wise or with chronic disease.

    As  for compassion. I have recieved it and know how to return it. That's a biggie it seems to be missing or my situation with cancer is to big and its been to long that no one knows how to handle it . But people do need to wake up. I survived it and am stable . The blessing is I realize its hard to fathom all of it. But to be really honest.
    This is my life and I m not going to be quiet cause it makes some squirm. Its insane  in a support situation.

    So that said. Life goes on and cancer takes a back seat for now.

    So I have been really laying low , the flu is better and the adjustments on medications I think settled. The rest well its not open for discussion.
    I am off to bed.  I am pooped and need to be ready to rock in the morning.

    Hugs and Prayers , always Hope

    Ps Thanks for the emails as well Everyone.




    Sharing Another Email.


    I am posting this with the okay of   Kathy Cawthon of  The Cancer Crusade. I received an personal email from her today. Thank You Kathy!



    Sometimes someone says something really small, and it just fits right into this
    empty place in your heart.

    ~ From the television show "My So-Called Life" ~

    The best portion of a good man's life - his little, nameless, unremembered acts
    of kindness and love.

    ~ William Wordsworth ~

    You've learned that a friend or family member has been diagnosed with cancer. You desperately want to help, to do something, anything to make this terrible experience somehow easier for him to bear. But you feel helpless. You don't know what to do. You don't even know what to say.

    We have some suggestions based on our own experiences and those of countless generous survivors and caregivers who have shared their tips and ideas with us over the years.

    The subject of last week's affirmation was what not to say to a cancer survivor (and for the record, a "cancer survivor" is anyone who has been diagnosed with cancer, even if it was 5 minutes ago), so today we will suggest some things survivors like to hear:

    "I can help." Notice that's not a question. It's a statement. Cancer survivors are reluctant to answer the too-frequently asked question "What can I do to help?" Most of the time it's because they don't want to impose their illness on you (i.e they're being "nice") and they don't want to feel helpless. So they will answer with, "Oh, nothing really." Sometimes it's because they're in shock. They're reeling from the diagnosis, a recurrence, or bad lab results. They can't even think clearly enough to answer your question, so it's easier to say, "Nothing. Honest, I'm fine." That's why it's so important for you to take the lead
    and state, "I can help."

    Then do it. There are countless books and magazine articles and past affirmations from The Cancer Crusade that list specific things you can do to help. You need to take the initiative and find those publications (Hint: helpful link at the bottom of this page). You can also ask the survivor's family members for suggestions of ways you can help. Remember, no matter how badly you many want to, you cannot make your friend or family member well. Treatment decisions are between the survivor and his medical team (although, of course, if you are a primary caregiver, you will need to be "in the loop" regarding treatments, especially medications that need to be taken at home), but you can be a very important contributor to his emotional
    and spiritual well- being.

    "I'm here for you." Sometimes there is nothing to say. Follow the survivor's lead here. She may not want to talk at all. She may just want you to hold her hand or put your arms around her and let her cry. When you see this is what she needs, don't say anything. Work on becoming comfortable with the silences. One way to do this is to focus on becoming very still and quiet within yourself and know that, when the pain and grief are too big for words, God is there - in the silence, when there is nothing to say. Don't be afraid of that silence because you're not alone there.

    "You can cry with me." Again, follow the survivor's lead here. You may be able to tell that he is struggling to smile during your visit, putting on a happy face just for you. A really good friend will shut the door and say, "It's okay to cry, you know. You can cry with me." And if he chooses to cry, it's okay if you cry, too. Sharing grief and pain with another person in this way is a powerful tool for emotional and spiritual healing. It's difficult. Not everyone can do it. If you can't, it's better to end your visit. And it's always best to postpone a visit if you are feeling weepy and the survivor is having a good day. You certainly don't want to bring him down when he's up! Remember, this is about the survivor, not you. If he needs to cry, you don't want to be responsible for him holding in powerful toxic emotions that need to be released. That is not healing nor helpful.

    "I love you." Far too many people are still far too uncomfortable with the most beautiful, healing words we have. If you are one of them, it's time to get over it. If "I love you" was spoken more freely every day, some powerful healing would take place in this world. If you don't believe how important these words are to speak and to hear, think of people who are already gone from your life. Don't you wish you had told them you loved them more often? Say "I love you" today to more people than you said it to yesterday.

    "I won't leave you." The going could get very rough or it might be smooth sailing. Treatments may change how your friend or loved one looks and behaves. There will be good lab results, and there may be bad ones. To paraphrase Bette Davis's famous line in All About Eve, "Fasten your seat belts. It's going to be a bumpy ride." Ask yourself if you can take it. If you can, tell the survivor that no matter what happens, you won't leave him. If you can't, best to skedaddle now. When I was diagnosed, I had what I thought was a very close friend of seven or eight years. I never heard from her again after I told her the news. I heard later from other friends that she "just couldn't take it." Well, geez, I'm awfully sorry that my multiple surgeries, chemotherapy and radiation treatments were so hard on her, but in hindsight it's best she disappeared when she did and not when I was at my sickest months later.

    "Whatever you're feeling is okay." Survivors are often reluctant and even embarrassed to talk about some of the things they're thinking, worrying about, even dreaming about. They're afraid they might sound "crazy" if they tell anyone. Let your friend or family member know that she can talk to you about her feelings. And when she does, don't change the subject. If you change the subject, it tells her you're uncomfortable and makes her feel even more alone and isolated.

    The most important things to remember are to take the lead when figuring out what you can do to help, but follow the survivor's lead when it
    comes to conversation.

    Dear God, someone I care about has cancer. I am so afraid for him, and I don't know what to say or do to ease his pain and fear. Help me today to become a true caregiver in every sense of the word. Let my mouth speak only words of comfort and hope. Let my hands lend warmth and strength. Let everything I say and do be helpful, not hurtful. Guide me, God, as I walk this path with my friend. Be a lamp unto our feet as the way is often dark, and bring us into Your healing light.
    ~Amen~






    Roger and Kathy Cawthon
    The Cancer Crusade


     



    Blowing Off Some Steam.

    Sometimes I listen to people talk and  life at times sounds so easy . I hear them talking about the most trival things. Their perspective no matter
    what the situation is ..is always life sucks.  It never changes.
    Are the problems of the day life altering? No. Are they so bad that life can't go on? Nope. Then why complain??
    Sometimes you try to be honest and open. Why?  Because no matter what you do it means nothing to that person. Nothing.  Then you know you
    maybe said to much. When silence might have been the way to go.
    Sometimes silence says way more the any words can.  When words fail actions compensate. When my deeds fail my words I gotta hope help. Am I
    perfect heck no.

    But by I gotta pray that still as always Actions always speaks louder then words.

    Tonight my mood is perplexed. I just don't understand people. I just don't.

    And She Is Done!

    Way to go Linda!! Now its time to rest and regroup from radiation!! Wooo Hooo!! Yippeeeee!!!

    Just some thoughts.

    "You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing
    which you think you cannot do."
    Eleanor Roosevelt


    I was sitting here reflecting a lot on treatment of head and neck cancers...Although my story is about lymphoma so much was done concerning the head and neck. I think for me going though my first surgery was a hassle more then anything. However back then...I just wanted the masses removed and that's what it was about. Once I found out I had the lymphoma it was about treating it and getting rid of this wide spread disease. But the catalyst for me was all the head and neck issues.
    I never realized till they did the radiation to the head, just how bad it really could be or how hard it was to work through the effects of what radiation did. Its a grueling situation and each person with each treatment of radiation its very different.  You can say I went tough this and that . The doctors can tell you this and that might happen but each person is so very different. Then things can happen that don't happen to the next person and it happens to you. So its not a clear cut situation to say we can even compare. Its all so overwhelming at times.

    I decided this morning to write about because of Linda and her situation. Linda and I met in Oncochat. An amazing place for patients and caregivers. Head and Neck situations are rare. So several of us help and talk those through things pertaining to this cancer. Its not an easy one its visual ,affects your senses and many things. Radiation makes eating and swallowing tough.  But you get though it . You fight though to the other side. Its a just do it situation.

    One thing is I learned that after radiation if I could get through that. I could do anything. Nothing like them putting you in a room with a mask on connected to a table then shutting a six inch metal door behind them and leaving you in there alone. The only thing I could think to do was say the Lords Prayer to get me through it.

    One thing I realize now is that was that I learned a ton about myself I did not know. I aways knew I was a tough cookie. But this proved it and was a very empowering experience.  I guess one could say I m full of beans...but till you  have been there . Its hard to explain it and what its like.

    Its taken me a long time to really say *Wow I did all of that!* but I did.  And I m here to say to Linda.. when your done take your time to heal. Be good to yourself. Don't expect for it to come all at once. You have been through a lot. Give yourself time to heal.  You will get there, little by little.  The doctors appointments are tough at first but you learn they are part of being vigilant with you disease. That is a good thing you want to stay on top of things. But for now bask in the spring air thats on its way knowing you fought hard to get to this point!! One More...Whoo Hooo that is such a good feeling !!! 

    Back to the couch for me.  Hugs and Prayers Hope


    Almost There.

    2  is the number of the day..1 more to go after today. Monday you can walk outta there knowing you did what needed to be done!
    Right now its about getting the job done and when it is..the healing will begin. One week till spring...Hugs and Prayers.

    YuK

    Looks like I have been blessed with an flu affecting the intestines. Oh joy! NOT. So I got fluids yesterday and meds to control the nausea and help me rest. Which it really did. But still feel kinda crappy to be honest. So I am back to bed and drinking more fluids. I hate not feeling well..UGH! More when I can Hugs and Prayers Hope

    Counting down with a Friend:)

    4 turns to 3 and I know how much Linda wants to have this done and finished. My thoughts and prayers sure are with her right now. 2 more to go and you are done.. Right in time for spring. Please know I am thinking about you. Hugs and Prayers.

    Hooting and Hollaring

    5 One full hand or a hand full.  5 treatments left to go. Light at the end of the treatment tunnel!  Go for it and get her done!!  Huge countdown going on here Open-mouthed